Welcome to the TRIO (Transplant Recipients International Organization) Post-Transplant Cancer (PTC) web site.
Some words quoted from
"Receiving a diagnosis of cancer can fill anyone with an undeniable sense of dread. With the global prevalence of various cancer forms seemingly growing by the day, the notion that “this won’t happen to me… it happens to other people” is beginning to phase out. Cancer is touching more and more lives.
"Think about it… you probably know at least one person who has battled this disease. But if it hasn’t affected someone very close to you, how much do you really understand about the impact it has on a person’s life? Awareness campaigns like 'Forever Changed' are going beyond ‘knowledge is power’ initiatives, generating proactive plans that provide support where it is most needed.
The global scale of cancer
"Cancer is spreading… It’s touching everybody’s life. Young and old, cancer is likely to affect each of us in some capacity or another at some point in our lifetimes, and for some, perhaps even on more than one occasion. It can happen to you. It can happen to a loved one or even a colleague. While not a very comforting thought, it is the stark reality that few can now ignore."
On this TRIO post-transplant cancer education web site for transplant recipients, you will find structured educational material and videos to. . .
1st: LEARN about and raise your awareness of cancer risk for transplant recipients.
Once aware of the higher risk . . .
2nd: you can learn symptoms to LOOK out for
and importantly . . .
3rd: how to deal and LIVE with cancers that affect the majority of long-term transplant survivors.
Finally you will have . . .
4th: LINKS to resources that will help you go further in this life-saving learning process.
> "Staying on Guard Against Skin Cancer" NY Times 10/15/2019
> "Cancer-Attributable Mortality Among Solid Organ Transplant
Recipients in the United States: 1987 Through 2014" 9/1/2019
> "What's the sunscreen situation?" 8/30/2019
> Cancer Immunotherapy and you (a patient education webinar series by CRI) 8/30/2019
> Cut unhealthy behaviors to reduce cancer mortality by one third 8/13/2019
> Pro and anti-cancer effects of immunosupressive agents used in organ transplant 6/27/2004
> Cancer Immunotherapy and You (video) 8/14/2019
> Scientists develop novel nano-vacine for melanoma 8/6/2019
> How to Use Your Smartphone to Detect Skin Cancer 7/10/2019
> New Weapons Against Cancer: Millions of Bacteria Programmed to Kill 7/3/2019
> PTLD after solid organ transplantation fact sheet (and clinical trials) 5/25/2019
> Stem Cell Therapy explained - hopeful advances 5/8/2019
> Clinical trials searchable database maintained by NIH
> Survival after a cancer diagnosis among solid organ transplant recipients in the United States 1/9/2019
> more . . .
Resources previously listed here are archived on our
PTC On-line Resources Library page (<-- click here to connect to that extensive linked list of materials)
Note: Content is being added as our research progresses, with the more popular topics being expanded first, ie., organ type: kidney (80% of transplants are kidneys); cancer type: skin (most common cancer by far in post-transplant patients) - since that will serve the greatest number of patients first.
Imagine this too common scenario: A candidate for organ transplant attends the pre-transplant introduction offered by most transplant programs. Among the overwhelming amount of information explained is the fact that a transplant recipient will be on immunosuppressant medications for the...
Updated: 7/20/2019 JMG
Each type of organ transplant comes with cancer risks that may be different due to unique biology of that organ, or more commonly, due to the different drug protocals - both drug type and dosage - used for each type of transplant.
In this LOOK...
Once you LEARN about the higher risk of cancer in organ transplant patients and can LOOK for the signs that give early warning to cancer types common to your type of organ transplant, its time to face and understand how to LIVE through the life cycle of cancer. That will inlcude...
Beyond learning about the risks of cancer post-transplant, and then looking to recognize symptoms so you can live with action to address those risks early on when treatment success is most likely, in this final LINKS section...