• Bob Goodman

    Bob, living the full life post heart transplant with his wife, Patti

    Bob Goodman, heart recipient, athlete and post-transplant cancer survivor

  • Susan Pincus

    Susan, kidney/pancreas transplant athlete, living life to the fullest overcoming skin cancer

    Susan Pincus, kidney/pancreas transplant 1998

  • Art Lekoff

    "Art, heart recipient, living life to the fullest overcoming cancer."

    Art Lekoff, heart & kidney recipient 2004

  • Elizabeth Rubin

    "Elizabeth, 23 years post liver transplant, enjoying life beyond skin cancer."

    Elizabeth Rubin, liver recipient 1992, cooking at Gift of Life Family House

  • Bob Kelchner

    "Bob, recipient of two living donor kidneys, in control (train hobbyist) thriving beyond post-transplant cancer."

    Bob Kelchner, 13 years and two living family donors later

  • Valen Cover-Keefer

    "Valen, 13 years alive with a living donated kidney, living a full life with skin cancers overcome!"

    Valen Cover-Keefer, kidney recipient, 2002

An Introduction to Post-Transplant Cancer

Welcome to the TRIO (Transplant Recipients International Organization) Post-Transplant Cancer (PTC) web site.

updated: 5/25/2019

Some words quoted from Bronwen Watson as shared on mymed.com
"Receiving a diagnosis of cancer can fill anyone with an undeniable sense of dread. With the global prevalence of various cancer forms seemingly growing by the day, the notion that “this won’t happen to me… it happens to other people” is beginning to phase out. Cancer is touching more and more lives.

"Think about it… you probably know at least one person who has battled this disease. But if it hasn’t affected someone very close to you, how much do you really understand about the impact it has on a person’s life? Awareness campaigns like 'Forever Changed' are going beyond ‘knowledge is power’ initiatives, generating proactive plans that provide support where it is most needed.

The global scale of cancer

"Cancer is spreading… It’s touching everybody’s life. Young and old, cancer is likely to affect each of us in some capacity or another at some point in our lifetimes, and for some, perhaps even on more than one occasion. It can happen to you. It can happen to a loved one or even a colleague. While not a very comforting thought, it is the stark reality that few can now ignore."
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On this TRIO post-transplant cancer education web site for transplant recipients,  you will find structured educational material and videos to. . .

1st: LEARN about and raise your awareness of cancer risk for transplant recipients.
Once aware of the higher risk . . .
2nd: you can learn symptoms to LOOK out for
and importantly . . .
3rd: how to deal and LIVE with cancers that affect the majority of long-term transplant survivors.  
Finally you will have . . .
4th: LINKS to resources that will help you go further in this life-saving learning process.

TRIO invites you to come, enjoy and learn how to live a long cancer-free healthy life with your transplant.

LEARN --> LOOK --> LIVE --> LINKS

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Recent updates & PTC news:

> PTLD after solid organ transplantation fact sheet (and clinical trials) 5/25/2019
> Stem Cell Therapy explained - hopeful advances 5/8/2019
> Clinical trials searchable database maintained by NIH
> Survival after a cancer diagnosis among solid organ transplant recipients in the United States 1/9/2019
> How the Microbiome Could Be the Key to New Cancer Treatments 3/7/2019
> 30 Cancer Symptoms You Should Never Ignore 2/20/2019
> 4 Important Steps to Take After a Cancer Diagnosis 2/13/2019
> Scientists may have found a way to treat cancer without chemotherapy by replicating our body's own self-destruct system 1/15/2019
> Australia melanoma research: Queensland researchers to trial 'cancer-stopping' stem cell drug 1/9/2019
> Risk High, Prognosis Poor for Aggressive Squamous Cell Carcinoma in Organ Transplant Recipients 1/3/2019
> Blood Test to Detect Early-stage Melanoma Developed 1/1/2019
> Aggressive Squamous Cell Carcinoma in Organ Transplant Recipients 12/31/2018
> 51 Things Dermatologists Need You to Know About Skin Cancer 12/30/2018
> Australian researchers develop 10-minute cancer test 12/5/2018
> Chasing Cancer: A Washington Post Panel event (videos of the discussions) 12/3/2018
> Mike Rowe video demonstrating prostate cancer screening 11/6/2018
> more . . .

Resources previously listed here are archived on our
PTC On-line Resources Library page (<-- click here to connect to that extensive linked list of materials)

Note: Content is being added as our research progresses, with the more popular topics being expanded first, ie., organ type: kidney (80% of transplants are kidneys); cancer type: skin (most common cancer by far in post-transplant patients) - since that will serve the greatest number of patients first.

 

Learn More

  • Post-Transplant Cancer

    Risks by Organ Type

    Imagine this too common scenario: A candidate for organ transplant attends the pre-transplant introduction offered by most transplant programs.  Among the overwhelming amount of information explained is the fact that a transplant recipient will be on immunosuppressant medications for the...

    Learn More


    Choose a transplant organ type:

    Intestine 
 Coming soon

    Intestine

    Coming soon
    Kidney 
 Coming soon

    Kidney

    Coming soon
    Liver 
 Coming soon

    Liver

    Coming soon
    Lung 
 In process

    Lung

    In process
  • The Most Common

    Post-Transplant Cancer Types

    Each type of organ transplant comes with cancer risks that may be different due to unique biology of that organ, or more commonly, due to the different drug protocals - both drug type and dosage - used for each type of transplant.  

    In this LOOK section you will find topics...

    Learn More


    Choose a cancer type for more information:

  • Post-Transplant

    Life Phases

    Once you LEARN about the higher risk of cancer in organ transplant patients and can LOOK for the signs that give early warning to cancer types common to your type of organ transplant, its time to face and understand how to LIVE through the life cycle of cancer.  That will inlcude...

    Learn More


    Choose a Life Phase for more information:

  • Post-Transplant Cancer

    Resources

    Beyond learning about the risks of cancer post-transplant, and then looking to recognize symptoms so you can live with action to address those risks early on when treatment success is most likely, in this final LINKS section...

    Learn More


    Choose a resource for more information:

Sponsors & Supporters


  • AAKP
    Bronze
  • Clinical Consulting Associates
    Bronze
  • GLI
    Supporter
  • GuideStar GOLD
  • Notion design sponsor
    Supporter
  • solicitation
    various
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    DISCLAIMER: The content of this TRIO post-transplant cancer Web site is not influenced by sponsors. The site is designed primarily for use by transplant recipients and their supporters. The information contained herein should NOT be used as a substitute for the advice of an appropriately qualified and licensed physician or other health care provider. The information provided here is for educational and informational purposes only. In no way should it be considered as offering medical advice. Please check with your transplant team or a physician skilled in cancer and your organ type if you suspect you are ill.